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Advocate Stroke Spacer The Stroke Advocacy Network (SAN) is the voice of the stroke community. SAN members impact public policy outcomes by influencing decision makers through writing letters, signing petitions, meeting with their legislators, and much more.
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Caregiving & Support

Caregiving and Support Spacer Download free resources, including the Caregiver Guide to Stroke, which provides practical tips and information for caregivers, a Stroke Discharge Checklist, Home Care Information Sheet and more HERE

Stroke recovery can be a difficult and confusing process for the survivor and the caregiver. This guide is meant to help you, the caregiver, better navigate the recovery process and the financial and social implications of a stroke.
We’ve provided you with tips on how to communicate with the healthcare team and manage the effects of a stroke, as well as information on legal resources, financial support, and health coverage.
To learn more about stroke, visit StrokeAssociation.org. For caregiving or general stroke inquiries, please contact togethertoendstroke@heart.org

Please visit the National Stroke Support Group Registry to find a group near you, simply enter your ZIP code and a mile radius. If your initial search does not pull up any groups, try increasing your mile radius.
Once a group, or list of groups appear, you may click on any group for more details about them.
If you're a group leader and would like to update your information or register your group, visit the Support Group Leaders section.

Here are twentysix (26) PDF text articles about Caregiving, click and "Select" one and click "Go".
You can open and read your selection or download and save it to your computer to read and/or reference later.
Open & View and/or Save & Download

NOTE: There are many online websites with various information about Caregiving/Caregivers. Browse through this one and I'm sure that you will agree that it ranks at the top.
For more links to websites for information and Support for Caregiving/Caregivers Click Here.

Caring
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Caring.com is the leading online destination for those seeking information and support as they care for aging parents, spouses, and other loved ones.
Our mission: to help the helpers. We equip family caregivers to make better decisions, save time and money, and feel less alone -- and less stressed -- as they face the many challenges of caregiving.
More than 40 million people in the United States care for someone over age 50, yet most have little preparation or experience when they begin their caregiving journey.

To make that journey a little easier, we provide personal, one-on-one guidance with a Family Advisor, thousands of original articles, helpful tools, a comprehensive local Senior Care Directory, and the collective wisdom of an involved community.
Caring.com's carefully researched and expert-reviewed content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Our seasoned management team, editors, and technical staff have decades of experience producing award-winning health and family media. But perhaps more important, nearly all of us have firsthand experience as caregivers. We know well the role's practical challenges as well as its emotional ones. And we're dedicated to guiding a fast-growing population of new caregivers through both.

Editorial and Advertising Policy
As part of our mission to provide caregivers with expert, trustworthy content, we keep a strict separation between advertising and editorial content. We never allow advertisers to influence editorial content, and wherever an ad appears it is clearly labeled as an advertisement.
We know that being objective and earning consumers' trust is critical for our business.
From time to time, our sponsors provide funding to help us develop special resource centers or tools. These resource centers are developed by Caring.com editors in partnership with our sponsors and are always marked as advertisements.
Caring.com makes money from paid advertisements, enhanced senior living directory listings, senior living referrals and special offers to our members.

Our Mission
You're there for them. We're here for you.
Maybe you chose the role of family caregiver. Or maybe it chose you. Maybe you found yourself here overnight, courtesy of a heart attack, a hip broken in a fall, a cancer diagnosis. Or maybe this new role shuffled into your life on aging feet, as dementia slowly stole your husband's ability to pay the bills or poor vision made it harder for your mom to live alone.

More than 40 million other family caregivers have faced similar "oh, no" moments and are feeling their way, day by day, just like you.
So many questions and decisions: When to back off and when to butt in? How to pay?
What should I know about talking to doctors, drawing up legal papers, resolving family conflicts, touring care facilities, turning to hospice, planning a funeral?

So many demons: stress, guilt, resentment, anger, fatigue, worry, fear. Exasperation can reach near-comic levels, like when your frail and failing mom, after listening to all your carefully researched ideas to get her some help, tells you, "I'll be sure to do that, dear -- [long pause] -- just as soon as hell freezes over."

Caring -- for all it asks of you, for all its drama -- rarely rewards you with a classic happy ending.
Yet the plot can be full of grace notes: an agreement to disagree after a lifetime of bickering. A grateful smile after a sponge bath. Childhood stories you never heard before. A bedside family reunion.

We hope you find some relief in knowing you're not the only one at this difficult crossroads. Helpers need help. We need our hands held (in the form of checklists and specific advice and a simple calculator that finally explains what Medicare covers).
We need shoulders to lean on (whether they belong to local experts or to distant kindred spirits). We need hugs (real and virtual). A pat on the back from a sibling or the person you're caring for wouldn't hurt, either, but we know you may not be holding your breath for that one.
Support, from near and far, makes caring possible. We need one another -- sharing the lessons each of us has learned along the way, the insights we've gathered, our collective wisdom.
Will you join us?

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Online Support Groups

Featured Groups for Caregivers
Get caregiving tips, advice, and support with Caring.com's online support groups. Connect with those who understand what you're going through. Share, vent, laugh, and feel less alone. We're here for you.
To help keep this a safe and supportive place for all caregivers, please review our Community Guidelines. If you have any questions or need help with your free member account, please get in touch with our Community Team.
Caring.com online support groups are dedicated to connecting caregivers, family, and loved ones around a common topic. Support groups are available for Alzheimers, Parkinsons, cancer, COPD, caring for a spouse, and more. Over thirty (30) Support Groups to choose from. Join Us

Source: eMedicineHealth.org

Slideshow: 14 Ways To Avoid Caregivers Burnout
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Here are fifteen (15) Infographics with a lot of brief but blunt information about Caregiving & Support.
Use the menu to jump to the one of your choice or use the scroll bar to look at and read them all.

1. Emotional & Financial cost of Caregiving
2. Caregivers provide an extra level of care
3. They are Super Heros
4. Anatomy of a Family Caregiver
5. November is Caregivers Month
6. 10 Tips to avoid burnout
7. How to avoid Caregivers Stress
8. A look at Caregiver and Senior relationships
9. Caregivers guide to managing Incontinence
10. Cares guide to handling criticism
11. Guide to aging in place
12. Caregiver Recognition Benefit
13. Caregiver: Dementia Toolkit
14. Caregiving from afar
15. Benefits of smaller Assisted Living Centers

1} Emotional & Financial Cost Of Caregiving
Cost of Caregiving

2} Caregivers Provide An Extra Level Of Care
Extra level of care

3} They Are Super Heros
Super Heros

4} Anatomy Of A Family Caregiver
Anatomy of a caregiver

5} November Is Caregivers Month
Trivia Facts Infographic

6} 10 Tips To Avoid Burnout
Avoid burnout

7} How To Reduce Caregivers Stress
Reduce Stress

8} A Look At Caregiver And Seniors Relationships
Caregiver and seniors relationship

9} Caregivers Guide To Managing Incontinence
Manage incontinence

10} Caregivers Guide To Handling Criticism
Handling criticism

11} Guide To Aging In Place
Aging in place

12} Caregiver Recognition Benefit
Caregiver recognition

13} Caregiver: Dementia Toolkit
Dementia toolkit

14} Caregiving From Afar
Caregiving from afar

15} Benefits At Smaller Assisted Living Centers
Aging in place
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20 Inspirational Caregiver Quotes
August 20, 2015 By Emma Dickison
It is an honor to care for aging parents. In the summers and on holidays my family would drive to Kentucky from our home in Florida to help care for my Nan. Then, when I was a senior in college, my mother suffered her third stroke, and six months later my dad was diagnosed with terminal cancer.

Family is not an important thing. It’s everything.
— Michael J. Fox, actor

I’m proud of being there for my parents in those years, but it was a very trying time. Life became complicated for my family much faster than anyone could have anticipated. It was frustrating to witness my loved ones’ health get worse, and frightening to be thrust into a caregiver role at a young age.

It’s with that in mind that I’d like to share some quotations about caregiving that are meaningful to me and those I work with at Home Helpers. We believe staying positive is crucial in family caregiving situations. I hope these words bring comfort to those who need it.
(Please share these caregiver quotes with friends or loved ones who need some extra positivity in their lives!)

Inspirational Caregiver Quotes

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Find Information And Support For Caregivers/Caregiving
  • Careliving Community
    Caring for Yourself and a Stroke Victim
    Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support
  • Family Caregiver Alliance
    FCA has partnered with Smart Patients to create this new Caregivers Community so that caregivers and other loved ones can join the community for free to share, interact, and learn from each other in a safe, supportive environment.
    And family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer’s, stroke, Parkinson’s, and other illnesses can share their own expertise with this new community. By partnering with Smart Patients, we are helping empower caregivers to improve care for themselves and others.
    Join the Smart Patients Caregivers Community ask a question, and support others who can learn from you.
  • Caregiving.com Caring For YoU As You Care For Your Family
    When you care for a family member or friend, we care for you. We're a community of supportive individuals caring for a family member or friend.
    We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving.
    Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.
  • Caregiver Action Network (CAN) Help For Caregivers
    Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
    CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.
    CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge. Join and Connect With Us Now
  • Alzheimers Association Caregiver Support Groups
    Alzheimer's disease is life-changing for both those who are diagnosed and those close to them. Our support groups provide a place to connect with other caregivers who truly understand what you are going through.
    About our support groups
    Often times, we hear caregivers say they are looking for support from people who "really understand because they've been there, too." An Alzheimer's Caregiver Support Group offers just that – a safe place for caregivers, family and friends of persons with dementia to meet and develop a mutual support system.
    It's a place to:
    - Exchange practical information on caregiving problems and possible solutions
    - Talk through challenges and ways of coping
    - Share feelings, needs and concerns
    - Learn about resources available in your community

    All of our support groups are facilitated by trained individuals.
    In addition to caregiver support groups, we also have support groups designed specifically for people in the early stage of Alzheimer's.
    Prefer to get support online? Join AlzConnected, our online community of caregivers.
  • Family Caregiving Tips For Making Family Caregiving Easier And More Rewarding
    A look at Family Caregiving
    Providing care for a family member in need is an act of kindness, love, and loyalty. And as life expectancies increase, medical treatments advance, and increasing numbers of people live with chronic illness and disabilities, more and more of us will participate in the caregiving process.
    There are many different types of family caregiver situations. You may be taking care of an aging parent or a handicapped spouse. Or perhaps you're caring for a child with a physical or mental illness.
    Regardless of your particular circumstances, you're facing a challenging new role.

    If you're like most family caregivers, you aren't trained for the responsibilities you now face. And you probably never anticipated you'd be in this situation.
    You may not even live very close to your loved one. At the same time, you love your family member and want to provide the best care you can.
    The good news is that you don't have to be a nursing expert, a superhero, or a saint in order to be a good caregiver. With the right help and support, you can be an effective, loving caregiver without having to sacrifice yourself in the process.
  • Stress Management Caregivers Stress: Don't Forget Self Care
    Family caregivers often try to do everything themselves. But to be a good caregiver, you must first take good care of yourself.
    Maybe you take care of your spouse, who's in the early stages of Alzheimer's. Or you've been tending to the needs of your mother since she was diagnosed with cancer.
    Perhaps your child was born with a lifelong condition requiring specialized care. Whatever the circumstances, family caregivers tend to have at least one thing in common: They forget to take care of themselves.
    While caring for those you love is important, and can be meaningful, caregiving is stressful work. It can be exhausting, both physically and emotionally.
    If you don't take good care of yourself, you won't have the energy to care for others.
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Founded by Lynn B Goddess in April 2000 for Stroke Research in Women as a legacy to her mother who died of complications from stroke. Lynn's journey meeting the demands and challenges of her mother's illness dramatizes the overwhelming gap that exist between perception and reality when it comes to stroke in women. Read the article "What Women need to know about stroke" in StrokeSmart Magazine Click Here

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